Mary FE Ebeling is a sociologist working at the intersections of STS, feminisms, digital life, data clouds and the databased society, futurisms and alternatives.
Healthcare and Big Data: Digital Specters and Phantom Objects is now available online and in stores.
This highly original book is an ethnographic noir of how Big Data profits from patient private health information.
Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private health information by examining networks of disclosure that private patient data traverses. The noir narrative reveals the processes that the data broker industry uses to create data commodities—data phantoms—or the marketing profiles of patients that are bought by advertisers to directly market to consumers.